Saint Charles,IL 
Today
Sunny High 33FLow 26F
  • Temp: 32F
  • Hum: 66%
  • W: 4mph W
SATURDAY
Cloudy
High 35F
Low 28F
SUNDAY
Patchy rain nearby
High 38F
Low 30F
MONDAY
Light drizzle
High 40F
Low 39F
TUESDAY
Patchy rain nearby
High 40F
Low 33F

So, today's the day.

I'm taking a half day from work so I can be outside of this office when I get the news... whatever it may be.

In Chris' words... since I can't articulate it any more eloquently: I realize this is primarily Laura's Blog, but I wanted to thank everyone who has posted kind thoughts and sent prayers our way. This is a very tough time for us, and it means a lot that so many people care so much for us. Thank you all. May the blessings you've sent be returned in kind.

Now we sit and wait for the phone to ring.

Thanks everyone for stopping by and taking time to think about the 3 of us.

Markers for Trisomy 18 showed up on our Harmony blood tests.

Trisomy 18 is mostly fatal. Most babies that are afflicted with this genetic mishap spontaneously miscarry prior to birth. Some are still born. Others live hours or days or weeks.

90% of babies (I've read as high as 95% of babies) do not survive their first year. The ones that do are so profoundly disabled and have such intricate and awful developmental problems that they are not able to do the most basic instinctual functions like eating, breathing, and pooping.

Harmony is not a diagnostic tool. It is a screening tool. The only way to properly and fully diagnose T 18 is through either an amnio test or a CVS test. Ultrasounds can help, but they are not definitive.

So, I had a CVS test yesterday. Along with another Level 2 Ultrasound. We got to see our little baby again. She looks perfect. Little face, little arms and legs, moving around actively, good strong heartbeat. I can't believe this could be happening. Of note, the Ultrasound did not have any of the hallmarks of T 18, which may (or may not) be present this early in the pregnancy. Doctor and tech both said it looked normal.

Doctor got me in right away, as I'm (actually we) are out of our collective minds. Sadness. Despair. I've lost 4 lbs. Since MONDAY.

Results should be in tomorrow.

Til then I hold onto a shred of hope that the Harmony test provided us with a false positive.

I know there's nothing any of you can say or do to make this any less terrible. Please just continue to keep us in your hearts. We may need more strength than we ever thought possible.

More information, if you're inclined:

What is Trisomy 18?

What is CVS testing?


Going to spend some time away from here, for a little while. There are some things going on that I can't find the words to write about just yet. Please keep us in your thoughts, and if you're the praying type, please pray.

I realize this is like "vaguebooking" but honestly it's all I have emotional energy for at the moment.

 

Yesterday:

  • Health data: Hours slept: 18

Today = Couch. Laundry. Cats. Couch. Kona.

All very non impact. 

  • Health data: Hours slept: 12

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